Welcome to the Cerebral Palsy Info website!

Mark & his wife Hello, my name is Mark. I am in my fifties and have lived all my life with Cerebral Palsy. I received my Cerebral Palsy (CP) diagnosis when I was 21/2 years old. It was moderate quadriplegic spasticity athetosis, and more recently, I was informed that I have dystonia due to my CP. This partly explains some of the changes I have experienced as I have got older. My wife Gemma, also has Cerebral Palsy, and we live independently together in our own home. My CP mostly affects all four limbs, with a minor speech impairment. Gemma's, CP affects her mobility. As we grow older we have both experienced a decline in our physical abilities and experiencce more pain. We also find that it takes longer to perform everyday activities.

I have discovered, that finding information on how CP affects individuals as they age and what resources there are in Scotland is extremely challenging. This is what has driven me to develop this resource.

Why I Created This Website

I created this resource because I’ve noticed that as we get older, people with CP often experience a decline in their physicalabilities. I’ve also found that there’s a lack of information available for older adults with CP. Additionally, through attending events at Cerebral Palsy Scotland, I discovered that others are experiencing similiar changes as they age. This was what inspired me to try and use my own skills and life experiences to create an online space and with all of your help, I hope to build it into a valuable resource dedicated to adults with CP living in Scotland.
I’m designing and developing the website myself. Presently the website is still in the early stages of development. (I’m still learning the ropes of web development!) I am about to attend a web development course to help me improve my skills and knowledge. I will be adding new features and content as I learn more about web development. To put the skiils I am learning into practice, I will write a monthly journal about my progress and experiences of returning to Further Education as an adult with Cerebral Palsy.

Aims

  1. Provide a one-stop resource for adults in Scotland living with Cerebral Palsy and experiencing changes in their abilities.
  2. The provision of peer-to-peer support for adults with Cerebral Palsy.
  3. Creation of a secure online environment to discuss issues relevant to Cerebral Palsy.
  4. Creation of a online platform to share experiences of living with Cerebral Palsy.

Main Goals of the Website

How You Can Help

For the website to succeed, I’d love for you all to contribute to it by writing blogs, sharing information about local resources and services. As we age, we face unique challenges that can be better understood and addressed through shared stories and insights.